Seeking support & stories of hope 🩷

(Also posted this over on the UC sub, technically her diagnosis is IBD unclassified so I’m hanging out on both! Hope y’all don’t mind)

My 3 year old daughter was diagnosed in December, and is currently hospitalized for the 2nd time after failing Prednisone and Remicade. They’ve put her on IV Tacrolimus and TPN for the time being while we decide on her next biologic, (because she is so young, it’s a very complicated process). Her IBD team will have multidisciplinary rounds in a couple of weeks, and unfortunately we just have to hang out here until then. It’s been an extremely rough day for the both of us. I would really appreciate any stories of hope, reassurance, or just general support. Thank you all 💕